SWAN

SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed conditions.

When Freddie was born we were a bit lost & it was very hard to get support. All the support groups were aimed at specific syndromes. I found SWAN on facebook in 2011 & it was finally a place where we belonged. Their were people who understood us & offered us advice. Without them i’m really not convinced i’d have managed to cope with everything as well as i have done. I’ve met some amazing mums who i speak to on a daily basis, who have some equally amazing children. ย It was being part of SWAN that made me begin my blog to help highlight undiagnosed children like Freddie.

Find out more by visiting
http://swanuk.wordpress.com/
Or visiting their facebook page
http://www.facebook.com/SWANchildrenUK
They are also on twitter
https://twitter.com/#!/SWAN_UK
ย Also you can find more swan bloggers on twitter
https://twitter.com/#!/SWAN_UK/swan-uk-bloggers

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