We have so much medical equipment in our house, a hi-lo chair, medicines, syringes, sleep system, bath lift, feeding tubes, as well as many other bit and bobs. The older Freddie gets the more and more equipment we seem to get and it begins to take over the house a bit. Every room you walk in you see some kind of equipment. Just a little reminder that a small boy lives in the house with big needs.
As much as we dislike seeing the equipment and it constantly reminds us of the huge care needs Freddie has, we know without it we would massively struggle so we have come to accept that it’s just part of our lives. The only part that ever got me down was the state of his bedroom. It had become so clinical. A hospital bed, a hoist, a feeding pump, a standing frame, a sleep system. His bedroom wasn’t at all a child friendly room fit for a cheeky 4 year old boy. It was just a depressing reminder of Freddie’s disabilities.
So we decided we needed to do something to give him the room he deserved. We knew we needed the equipment, It was all essential to care for Freddie, but one thing I knew we could change was his bed.
From the moment his bed was delivered I hated it. We were incredibly grateful that the NHS had supplied Freddie with a suitable bed but it really wasn’t at all attractive. I wanted to cry once it had been delivered and it took up most of his bedroom.
So after a bit of research and saving some pennies, Freddie now has a bedroom that’s more fit for a little boy. It still has a hoist and other equipment in there but the new bed has transformed his room. I no longer walk in and feel sad, It’s now a happy, fun place.
It has 2 big doors that open up to allow us to hoist Freddie in and out of bed. It can be locked everynight to keep Freddie safe. And the best part is underneath the bed there is a den that we have turned into a sensory area for Freddie to enjoy looking at his colourful lights & enjoy relaxing.
A bedroom fit for an incredibly awesome little boy.
Freddie’s bed was built by a company called Andersons Themes and Dreams and can be found on facebook.