It’s been such a long time since I got time to properly update Freddie’s blog, life has been very busy lately. Particularly since the arrival of Freddie’s baby brother and Freddie’s dad being out of the country for a few months.
It’s been a fairly hectic week for us with 4 days full of appoinments. Freddie’s had an appointment with the paediatrician, been to see a specialist dentist, had an eeg scan as well as several other appointments and discussions about possible upcoming surgeries, feeding regimes and epilepsy care plans .
Today we had a meeting at Freddie’s school to review his EHC plan. An EHC plan is a legal document that describes a child or young person’s special educational, health and social care needs. It explains the extra help that will be given to meet those needs and how that help will support the child or young person to achieve what they want to in their life.
The EHC plan was first done in July 2014 where we set Freddie a list of short term goals and 3 bigger long term goals we would like him to achieve –
- For Freddie to become independently mobile
- For Freddie to develop some independence skills
- To develop a functional communication system in order for him to signal his choices, preferences and needs.
Today we met with Freddie’s teachers, his nurse and social worker to discuss these goals & make any changes to Freddie’s EHC plan. We kept the above long term goals as they were and will we all continue to work with Freddie to help him achieve these. Some new short term goals have been added to make small changes to his school life mainly focusing around his new epilepsy plan and keeping him hydrated.
It seems that Freddie has settled in well at his new school and is happy in his new environment. He seems to be making new friends with the children in his little class and has used his charm to make all the staff fond of him.
The main feeling from the meeting is that Freddie is doing amazingly well. So well in one particular area that even I was surprised and almost reduced to tears during the meeting. We got to watch a video clip of Freddie in action at school, it had various photos of him playing and one video at the end that makes my heart swell with pride. My boy moving his feet in his walker!!. I’ve watched it several times now and every time my eyes fill with tears at what an incredible little chap my Freddie is. Watch it for yourself!