We have known since birth that Freddie has a genetic syndrome but we are still not sure yet which one he has. The genetics team suspected that it is so rare that possibly only a handful of people world wide have it. Over Freddie’s. 2.5 years of life we have acquired alot of doctors. We have close to 20 different doctors and therapist who each focus on a different part of Freddie’s care.
Over the past few years we have been told all sorts of different issues and problems that Freddie has. With so many doctors and therapists it can be easy to get confused with what’s going on with Freddie. So below i’ve grouped it all together. One big map of Freddie from a doctors point of view –
Swan Freddie has a new facebook page where you can keep up to date with all the goings on with Freddie. Just follow the link and give us a ‘like ‘- http://www.facebook.com/SwanFreddie?fref=ts